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发布于:2020-11-27 15:38:58  访问:0 次 回复:0 篇
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Baylis has proposed public empowerment in place of the existing models of public education or engagement.Her model is built on a processbased understanding in which broad societal consensus is defined not as unanimity or majority rule, but rather as unity. These and other proposals offer potential paths forward.Widespread support for a moratorium on heritable genome editing, including from influential groups of scientists, bioethicists, and biotechnology executives, has reinforced both the calls for broad and inclusive public engagement and the need for adequate time and resources to facilitate it. The resolution could go much further, by proposing concrete steps toward fostering public engagement and by calling for the worldwide moratorium on heritable genome editing necessary to provide time for these conversations to take place.But passing the resolution would represent an important step by US elected officials toward promoting democratic deliberation and claiming a role for the public in decisions about heritable genome editing.Despite decades of science fiction about genetically modified humans, and despite recent headlines about reasch Chromatin Modification Compound Library CRISPR babies, heritable genome editing has so far not found a prominent place on the mainstream political or policy agenda, especially in the US.But there are signs that this may be changing, including a spate of recent and forthcoming CRISPR books, television series, independent films, and documentaries aimed at a general audience.Perhaps in a few years time well be seeing the purchase Osteogenesis-related Compound Library meetings in church basements, the webinars, and the letterwriting campaigns that have been characteristic of other social movements taking on issues in which scientific and technical matters are key. In particular, it will be essential to interrogate the assumptions these stories carry about the publics role in deciding how such powerful technologies should and should not be used.A recent outrage surrounding public education and engagement efforts by the NAS illustrates why this continues to be so important.Critics drew attention to the glib and condescending tone throughout the materials, the casual normalization of human enhancement and designer babies, and the conflict arising from an apparent endorsement of germline enhancement by the very body that has taken it upon itself to develop a framework for clinical applications of germline editing. Even those known to support heritable genome editing panned the productions focus on enhancing intelligence and athletic ability.This episode handily illustrates many of the misconceptions identified in this essay.The conflation of disease and disability is repeated.Societal effects of heritable genome editing and its potential for exacerbating inequality go unexamined.Beyond these unfortunate confirmations of the routine distortions in CRISPR discourse, the incident also reveals troubling assumptions in how scientistdominated bodies view the publics role.Its report recommends broad ongoing participation and input by the public that would help regulatory bodies define the definitions of and boundaries between such terms as therapy and enhancement, and that would inform them about the individual and societal values to be placed on the benefits and risks before clinical trials for such enhancement interventions could be authorized. Yet in response to a sloppy public relations campaign, several people closely affiliated with the NAS seemed to imply that public fixation on these topics could only arise from uneducated and emotional lay reactions.
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